Read The Red Financials and Newsletters
Total funds raised nationally to 30 June 2018 – $2,665,104.66
45 Research Grants to date totalling $2,603,462
What’s it all about?
A video tribute to Inner Wheel from Dr Michael Doran and the team from the Stem Cell Therapies Laboratory, University of Technology, Queensland
Prime Minister Julia Gillard meets Grandma Cordelia and Grandpa Cordy
On 2 November 2012, the Inner Wheel Club of Gosford North, together with some other community groups, was invited to attend the launch ceremony on the Central Coast of the Federal Government’s Volunteer Grants. Gosford North club and Inner Wheel District A52 were both successful in being granted funds for small equipment.
Immediately after the official announcement Gosford North President, and A52 Cord Blood Coordinator, Pat Matthews, presented Prime Minister Julia Gillard with two Cord Blood bears – Grandma Cordelia and Grandpa Cordy – and a baby badge – the official logo for Inner Wheel Australia’s Cord Blood Research Project.
Charli’s Mum intended having the baby’s cord blood collected, but Charli arrived early and was born on the freeway at the Gold Coast.
Charli’s Mum, Kira noticed bruising on her legs and some pin point spots all over her, so she took her to her general practitioner. She was transferred to Brisbane and diagnosed with high risk Acute Lymphoblastic Leukaemia (ALL). She began the induction phase of her treatment and the first of many doses of chemotherapy.
Charli’s grandmother helped out in many ways, but particularly with making sure Jayden, Charli’s brother, was able to attend school at the Gold Coast, and she would then rush back to Brisbane to see Charli.
On day fifteen they discovered that the chemo was not working and the cells had mutated to a much worse form of leukaemia called Myeloid/lymphatic Leukaemia.
Charli had fourteen different types of chemotherapy drugs over the next five weeks, each a bit harsher than the last.
There was no bone marrow match. However, there were six perfect matches for a cord blood transplant.
More harsh treatment followed, and she was then taken to isolation where the staff stressed the importance of keeping the room clean. Everything in the room had to be washed daily, dried thoroughly – all jewellery had to be removed, isowipe shoes and gowns worn, and hands scrubbed.
During the transplant Charli’s blood pressure rose to 135/113 – she went from pale blue to almost navy. It was again another very frightening experience for the family. All blood results and weights were recorded for many days and the most important question asked was ‘what are the bloods today’?
Charli was eventually discharged to the Childhood Cancer Support Unit, but still remained isolated and on medication day and night.
At the six month stage she started the first of her immunisations and, eventually at the 12 month post transplant appointment, she was taken off all the medication.
Thanks to cord blood she is now a healthy, happy little girl and has started school.